BUTTERFLY HOUSE MISSION STATEMENT
To manage a palliative community resource of mutual care and support, which focuses on ‘living’ with life-threatening and life-limiting illnesses.

VISION
Quality holistic care; for the community, in the community, with the community.

Butterfly House is the venue for the Drakenstein Palliative Hospice Day Care Programmes. It is situated in Fairyland, an informal (now becoming more formal) settlement between Paarl and Wellington.

Butterfly House was established in partnership with Ivar Koteng & Nina Glad from Trondheim in Norway (supported by friends, family & staff), Familievernkontoret i Sǿr-trǿndelag, Paarl Round Table, Drakenstein Palliative Hospice, Monte Christo Ministries, Dianna Princess of Wales Memorial Fund, HPCA, Pepfar and many other Private Individuals and Community Members and Businesses (see list under Funders).

Butterfly House aims to provide services, often in partnership with other organisations, which will add to the quality of life of patients, their families (infected and affected) and others made vulnerable through neglect, abuse, malnutrition, substance abuse, extreme poverty and illness.

Participation with the Butterfly House activities is guided by the following beneficiary priorities:
a) patients
b) family of patients and then
c) vulnerable community members

The groups are restricted to 20 in order to promote quality care.

Butterfly House provides the following services:

ECC (Early Childhood Care)
Aims:
1. Psychosocial support: Play therapist, volunteers, social workers
2. Needs based: Initial needs based assessment, 3 x yr progress assessment
3. Nurturing: Focus on caring practices
4. Structure: Quarterly Programme planning, weekly theme preparation, daily time schedule, activity & staff allocation
5. Hygiene & health: Sick children (weekly Prof nurse) Other (quarterly Prof Nurse), HBC daily hygiene, weekly theme
6. Healthy adult involvement: ECD training, allocation to sessions (playroom & ECC centre), training monthly

Programmes:
Morning: 1 session plus playroom sessions (15 children / 4 adults), 2hrs Individual remedial response, Theme based group activity
Afternoon: Limited by availability of group leaders plus playroom sessions (Max 20 children: Group leader plus 1 other) 1 – 1.30 hrs depending on activity
Group skill activity: • Dancing • Choir (Maximum 30 children) • Music • Art & crafts • Physical activities

Youth Care Aims:
1. Psychosocial support: Play therapist, volunteers, social worker, peers & youth workers, bereavement & adherence support
2. Needs based: Initial needs based assessment, 3 x yr progress assessment, individual sessions, satisfaction questionnaire
3. Life skills: (Self-confidence, accountability, performance, gender, justice & ethics) Peer groups, networking partners, skills programme, ethos
4. Structure: Quarterly Programme planning, weekly theme preparation, daily time schedule, activity & staff allocation
5. Physical and sexual health & hygiene: Sick children (weekly Prof nurse) Other (quarterly Prof Nurse), HBC daily hygiene, weekly theme, part of life skills
6. Peer support: Focus groups, peace committee, Wagon of Hope, Paarl Jeug Inisiatief, Interact, Trained Community & HBC lead groups
7. A space to listen & feel heard: Ethos, open door policy, confidentiality, gender, justice & ethics

Programmes: (Time 2.30 – 5.30 & Friday evenings 6 – 8) Afternoon: Limited by availability of group leaders plus playroom sessions (Max 25 children depending on activity: Group leader plus 1 other, support groups 15) 1 – 2 hrs depending on activity
Group skill activity: • Homework • Dancing • Choir (Join with others) • Life skills • Computers • Drama & poetry • Music • Art & crafts • Physical activities • Support groups (bereavement, peer, adherence) • Playroom • Social groups

Out of School Youth Aims:
1. Psychosocial support: Future planning & Rehabilitative Support, Social Worker, Family support & counselling, Play therapist
2. Needs based: Initial needs based assessment, 3 x yr progress assessment, individual sessions, satisfaction questionnaire
3. Life skills: (Self-confidence, accountability, performance, gender, justice & ethics) Peer groups, skills programme, ethos
4. Structure: Quarterly Programme planning, weekly theme preparation, daily time schedule, activity & staff allocation
5. Physical and sexual health & hygiene: Sport & recreation, Quarterly Prof Nurse, weekly theme, life skills
6. Peer support: Focus groups, peace committee, Wagon of Hope, Paarl Jeug Inisiatief, Interact, Trained Community & HBC lead groups
7. A space to listen & feel heard: Ethos, open door policy, confidentiality, gender, justice & ethics

Programmes:
Morning: 1 session for adults (15 Youth / 2 adults) 2hrs Individual remedial response Theme based group activity
Afternoon: On assessment to join youth care programmes Evening: Catering, Computers & Youth Groups

Adult Programmes Aims:
1. Psychosocial support: Skills, economic strengthening, individual assessment & support, food security
2. Needs based: Initial needs based assessment, individual sessions, satisfaction questionnaire
3. Life skills: (Self-confidence, accountability, performance, gender, justice & ethics) Peer groups, skills programme, economic strengthening, ethos
4. Structure: Quarterly Programme planning, weekly theme preparation, daily time schedule, activity & staff allocation
5. Physical and sexual health & hygiene: Physical health, Recreation, Weekly Prof Nurse, wkly theme, life skills
6. Peer support: Focus groups (adherence, bereavement), Social interaction, Khula
7. A space to listen & feel heard: Ethos, open door policy, confidentiality, gender, justice & ethics
8. Independence: Hope for future, moving on, self motivation & skills Programmes: Morning: 1 session for adults (maximum 25 adults) 2hrs Individual remedial response Theme based group activity

Mon: Economic strengthening
Tue: Rehabilitative Support (Khula)
Wed: Medical & Psychosocial support
Thurs: Social support & Life skills (adherence) Afternoon: Bereavement support Evening: Catering & Computers

Each week runs according to a holistic theme emphasizing either physical, social, emotional, cultural, spiritual and education aspects of care. Each programme aims to be conducted in a holistic manner with particular value attributed to gender, ethics and justice issues.